• Keynote by Jamie Heywood, TED speaker and founder of PatientsLinkeMe and the ALS Therapy Development Institute-- "Are You Ready for the Bio-Industrial Revolution?"
• Panel of experts, entrepreneurs, and patients
• Music performance to soothe your soul
• Viewing of a powerful new documentary film just out: Undiagnosed (trailer)
• Demos from GeneDx and MyMee
• Bestselling book available about Jamie Heywood's struggle to save his brother from ALS-- His Brother's Keeper, by Jonathan Weiner
• Networking over drinks and delicious noshes from the Cure kitchen
Panel of industry experts, entrepreneurs, and patients
• Jamie Heywood, CEO, Alden Scientific, Founder of PatientsLikeMe and the ALS TDI research foundation
• Paul Kruszka, M.D., CMO of GeneDx
• Mette Dyhrberg, Founder & CEO, Mymee
• Kammy Moalemzadeh, Founder & CEO of Arcadia Investment Partners
• Lauren Ruotolo, Author, Content Creator, Keynote Speaker, and Disability Advocate
• Seema Kumar, CEO of Cure
Agenda
5:30 p.m. Reception, wine, beer, cocktails, and noshes; music
6:00 p.m. Program
Musical Performance
Keynote: Jamie Heywood, CEO Alden Scientific, founder of PatientsLikeMe and ALS Therapy Development Institute
Panel
• Paul Kruszka, M.D., CMO of GeneDx
• Mette Dyhrberg, Founder & CEO, Mymee
• Jamie Heywood, CEO, Alden Scientific
• Kammy Moalemzadeh, Founder & CEO of Arcadia Investment Partners
• Lauren Ruotolo, Author, Content Creator, Keynote Speaker, and Disability Advocate
Audience Q&A
Demo
• Mette Dyhrberg, CEO, MyMee-- demoing an app that helps auto-immune patients identify triggers for attacks and how to control symptoms implications.
Film
• Undiagnosed, a documentary film directed by Katie Maritz, PhD and Nicholas Miller. In partnership with FireFilms and the Strategic News Service (trailer).
7:00 p.m. Mingling, more demos, and informal discussion
7:30 p.m. Wrap
More About Jamie Heywood
Keynote speaker, Jamie Heywood, will share his journey after finding out that his brother, Stephen, had the terminal illness ALS. Jamie Heywood founded the ALS Therapy Development Institute, the world’s first non-profit biotechnology company and accelerated research on the disease by hiring scientists to develop treatment outside of academia and for-profit organizations. They were the first to publish research on the safety of using stem cells in ALS patients. Jamie has raised more than $50 million dollars for ALS and continues to serve the ALS community.